A multidisciplinary model of care aims to provide superior symptoms management, improved decision making and better satisfaction with care for patients with End Stage Kidney Disease and their families.

A growing body of scientific evidence suggests that the provision of dialysis, while burdensome, offers little to no benefit for patients with End Stage Kidney Disease who are elderly, frail and suffer from comorbidities.

Kidney Supportive Care Program (KSCP) is a holistic patient-centred service designed to combine the essential aspects of kidney and palliative care. Its key features include coordination of health care in a multidisciplinary team, shared decision making involving patients and carers, enabling independent living, management of symptoms tailored to the individual needs, provision of information and advice, and advance care planning. KSCP, which is the first program of this kind in Queensland, attracted over 100 patients during the first 9 months since start in February 2016.

The data gathered during its operation will serve research purposes and include patient-relevant outcomes such as symptoms, satisfaction and health-related quality of life, surrogate endpoints specific for chronic kidney disease, as well as information on health services utilisation, associated costs, and stakeholder feedback. A mix of qualitative and quantitative methods will be used to evaluate the program outcomes in three key dimensions: clinical, health economic, and implementation.

Project members

Contacts and investigators

Professor Luke Connelly

Professor - CBEH
Centre for the Business and Economics of Health

Dr Marcin Sowa

Postdoc Research Fellow CRE CKD
Centre for the Business and Economics of Health